Latest EveryLife Foundation for Rare Diseases News & Updates

US Senate Panel Criticizes FDA Over Rare Disease Treatment Delays

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Washington, Feb 28 (IANS) A bipartisan US Senate panel took aim at the Food and Drug Administration over delays and shifting standards that witnesses said are blocking rare disease treatments, warning that “time is the most precious commodity” for families and that “rare disease patients cannot wait.”At a hearing of the Senate Special Committee on Aging, Chairman Rick Scott said the central question was whether the FDA is doing “everything Congress intended it to do to quickly get safe…