Kuala Lumpur, May 11 (IANS) The Human Genome Project II Rare Disease Alliance of the Asia-Pacific Region (HGP2 RaDiAnce-APAC) was launched here on Sunday to advance regional collaboration in rare disease care. The launch meeting brought together clinical experts, researchers in genomics, and representatives from public health and policy sectors from 10 APAC countries, including Malaysia, India, Vietnam, Thailand, Indonesia, Nepal, China, the Philippines, Cambodia and Pakistan, reports Xinhua new…
Latest Rare Diseases News & Updates
New Delhi, May 5 (IANS) The government on Tuesday said that the need for addressing rare diseases was first highlighted in the National Health Policy, 2017, and was subsequently institutionalized through the launch of the National Policy for Rare Diseases, 2021, which has positioned India among countries with a comprehensive national framework for rare diseases.Addressing a conference here, Union Health Secretary Punya Salila Srivastava said the core objective is to understand the challenges fac…
Washington, Feb 28 (IANS) A bipartisan US Senate panel took aim at the Food and Drug Administration over delays and shifting standards that witnesses said are blocking rare disease treatments, warning that “time is the most precious commodity” for families and that “rare disease patients cannot wait.”At a hearing of the Senate Special Committee on Aging, Chairman Rick Scott said the central question was whether the FDA is doing “everything Congress intended it to do to quickly get safe…
New Delhi, Feb 1 (IANS) Finance Minister Nirmala Sitharaman, presenting the Union Budget 2026-27 in the Parliament on Sunday, announced that the proposals for customs and central excise aim to further simplify the tariff structure, support domestic manufacturing, promote export competitiveness, and correct inversion in duty.The new Budget proposes to reduce the tariff rate on all dutiable goods imported for personal use from 20 per cent to 10 per cent to rationalise the customs duty structure.To…
Seoul, Dec 24 (IANS) South Korean President Lee Jae Myung met on Wednesday with patients suffering from rare diseases and their families and promised to enhance government support so they can receive the necessary medical treatment without excessive financial burden. Lee visited the Heavy Ion Therapy Research Institute at Yonsei Cancer Center in western Seoul, which offers cutting-edge cancer treatment, on Christmas Eve as part of his outreach to the socially vulnerable group, Yonhap News Agency…