Latest Thalassemia Patients Advocacy Group News & Updates

New Delhi, Jan 22 (IANS) Ahead of the Union Budget 2026-27, industry experts on Thursday urged the government to boost the health spending, and grant GST exemption on lifesaving equipment and vaccines, especially for thalassemia and cancer patients.The Union Budget will be presented by the Finance Minister Nirmala Sitharaman on February 1 at 11 am.Citing the rising burden of non‑communicable diseases and cancers in the country, the expert urged the government to invest more deeply in public he…

New Delhi, Jan 14 (IANS) A team of health experts and advocates here on Wednesday stressed the need for urgent systemic reforms to protect patients dependent on blood transfusions.In a new position paper, launched by the Thalassemia Patients Advocacy Group (TPAG), the experts stressed the need for safe, timely, and equitable access to blood and called it a fundamental issue of survival, dignity, and constitutional responsibility.”For individuals with thalassemia who require lifelong, regular blo…

New Delhi, Jan 2 (IANS) The US Food and Drug Administration’s (FDA) approval of the first-ever oral pill for anaemia in adults with thalassemia marks a historic milestone and can be a game changer in the management of the genetic blood disorder, said health experts on Friday.The FDA recently approved mitapivat (to be marketed under the brand name Aqvesme) for the treatment of anemia in adults with alpha- or beta-thalassemia.Mitapivat is the first medication indicated for both transfusion-depen…